History of Stomp Out Sickle Cell Walk
For many years, the Sickle Cell community voiced interest in having a walk, but no one group was able to coordinate it by themselves. In 2007, several community-based groups and medical institutions came together to sponsor and promote the First Annual Stomp Out Sickle Cell Walk. Through the hard, unified work of several organizations, the First Annual Stomp Out Sickle Cell Walk was held on September 18, 2007. The midpoint of the walk was the Washington Hilton, where the Sickle Cela disease Association of America was holding their annual convention. About 300 walkers participated in this collaborative effort. This year, this same dedicated group is hoping to double the number of walkers and expand the awareness and sponsorship of the Walk.
Children's National Medical Center, Center for Cancer and Blood Disorders
The mission of Children's National Medical Center is to improve health outcomes for children regionally, nationally and internationally; be a leader in creating innovative solutions to pediatric healthcare problems; and excel in Care, Advocacy, Research, and Education to meet the unique needs of children, adolescents and their families.
Lisa Thaniel, MSW, LICSW, 202-476-3555
DC DOH/ CHA/ Sickle Cell Program
The mission of the Department of Health is to promote and protect the health, safety and quality of life of residents, visitors and those doing business in the District of Columbia.
Valora Bishop, 202-442-9160
District of Columbia Greater Access to Pediatric Sickle Cell Services, Howard University (DC-GAPS)
The District of Columbia Greater Access to Pediatric Sickle Cell Services is a project funded by the Human Resources and Service Administration and the DC Department of Health. The mission of DC-GAPS is to develop partnerships with the families and community based organizations to improve the quality of life for individuals and families and to provide a well coordinated system of care for infants and children with sickle cell disease in the metropolitan District of Columbia. Our goals include ensuring that newborns and children in the District are linked to medical homes to receive services from comprehensive sickle cell disease centers and the community; preparing and distributing educational materials, written and visual, for all relevant segments of our society; providing free hemoglobinopathy screening at Howard University Hospital and community events; developing and promoting the implementation of service programs that will be in the best interest of the affected population; assisting in maintaining the Families Advocating for Children and Adults with Sickle Cell Disease support group; and providing a forum for communication and collaboration of various community organizations and medical institutions.
Contact: Barbara Harrison and Dr. Sohail Rana, 202-865-4443
Faces of Our Children, Inc.
Faces of Our Children, Inc. is dedicated to raising awareness, support and funding for the fight against sickle cell disease worldwide in cooperation with the Howard University Center for Sickle Cell Disease through the development and delivery of educational programs and materials via the internet and mass media at work sites and schools and through community-based organizations that will help effectuate progressive public policy and increase both government and corporate funding in order to significantly improve the lives of families with sickle cell disease and ultimately eliminate this deadly disease that afflicts not only people of color but people from India, Greece, Italy, the Middle East, South and Central American and the Caribbean.
Mr. Donald Cash
Georgetown University Hospital, Div. of Pediatric Hematology/Oncology
The Georgetown University Hospital, Division of Pediatric Hematology/Oncology's mission is to deliver compassionate family-centered, state-of-the-art clinical care and education through a multi-disciplinary approach in an academic environment grounded in spiritual and ethical values.
Denise Garner, LICSW, LCSW-C 202-444-7599
Howard University Center for Sickle Cell Disease
The Howard University Center for Sickle Cell Disease was founded by the late Dr. Roland B. Scott in 1971 to address the needs of patients and families in the Washington Metropolitan area, who are affected by sickle cell disease. The Center is committed to a six-fold goal that includes comprehensive medical care, research, testing, education, counseling and community outreach. Currently, the Center has expanded its clinical research program and developed a collaborative consortium with Children's National Medical Center (CNMC). Working together, Howard University Hospital, CNMC, NIH and the Howard University Center for Sickle Cell Disease are the Washington area's leading provider of patient services for sickle cell disease.
Dr. Victor Gordeuk, 202-865-8284
Howard University Hospital
Howard University Hospital is committed to fulfilling its mission of excellence in service, education and research. Over the course of its 145-year history of providing the finest primary, secondary and tertiary health care services, Howard University Hospital, a Level 1 Trauma Center, has become one of the most comprehensive health care facilities in the Washington, D.C. metropolitan area. In April 2007, the Hospital ranked number one among selected area hospitals on 19 quality measures published by the U.S. Health and Human Services Department.
Lauren D. Beck Sickle Cell Foundation, Inc.
The LDBSCF was established after the death of Lauren Beck, a 17 year old senior in high school. The Foundationâ€™s mission is to promote Sickle Cell awareness, and to advocate for those living with the sickle cell disease. We promote the importance of sickle cell screening, bone marrow donation, blood donation, and the need to provide adequate funding for health care services for everyone living with sickle cell disease.
Anika Wilkerson, President 443-618-3812
Tara Sanders- Vice President 240-274-2461
Sickle Cell Association of the National Capital Area, Inc.
The mission of the Sickle Cell Association of the National Capital Area, Inc. (SCANCA, Inc.) is to provide programs that educate the National Capital Area community about sickle cell disease, and to utilize effective resources that benefit the lives of individuals with sickle cell disease, their families and their communities. Our goals are to 1) further education and research in sickle cell disease; 2) promote community awareness of sickle cell disease; 3) promote and enhance educational and other opportunities for individuals with sickle cell disease; 4) provide a nonpartisan platform arena for major issues of local significance; and 5) be a community advocate for those with sickle cell disease and their families.
Contact: Ms. Iola Williams, Executive Director, 202-271-5733